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翻訳と辞書　辞書検索 [ 開発暫定版 ] スポンサード リンク International Dravet Epilepsy Action League ： ウィキペディア英語版 International Dravet Epilepsy Action League The International Dravet Epilepsy Action League (IDEA League) is an American non-profit organization that has created an international partnership of parents and professionals with the purpose of creating greater awareness and understanding of Dravet syndrome and the spectrum of related genetic forms of epilepsy. The IDEA League is a nonprofit organization that was founded by parents of children with Dravet syndrome in October 2005. The National Institutes of Health direct individuals seeking information on Dravet Syndrome to the IDEA League.〔http://www.ninds.nih.gov/disorders/dravet_syndrome/dravet_syndrome.htm〕 The IDEA League represents Dravet Syndrome and is a member of the National Organization for Rare Disorders (NORD).〔http://rarediseases.org/nord/programs/links/member〕 ==History== The IDEA League was founded in October 2005 by parents of children with Dravet syndrome as an international partnership of parents and professionals united in the purpose of creating greater awareness and understanding of Dravet syndrome and the spectrum of related genetic forms of epilepsy. The organization was incorporated in the state of Minnesota, USA, in February 2006; and designated a 501(c)3 tax-exempt public charity by the US Internal Revenue Service in November 2006. 抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』 ■ウィキペディアで「International Dravet Epilepsy Action League」の詳細全文を読む スポンサード リンク 翻訳と辞書 : 翻訳のためのインターネットリソース Copyright(C) kotoba.ne.jp 1997-2016. All Rights Reserved.